Patient Resources
General
AAN (American Academy of Neurology) Guideline Summaries for Patients
Headache and Migraine
- American Headache Society
- American Headache Society Committee for Headache Education: http://www.achenet.org
- American Pain Foundation: http://www.painfoundation.org
- Migraine Research Foundation: http://www.migraineresearchfoundation.org
- National Headache Foundation: http://www.headaches.org
- Migraine Research Foundation: http://www.migraineresearchfoundation.org
Multiple Sclerosis
- National Multiple Sclerosis Society
- A nice podcast by local UCSF physician, Dr. Liz Crabtree, on Vitamin D and other topics
- National Ataxia Foundation (NAF): http://www.ataxia.org
- National Organization for Rare Disorders (NORD): http://www.rarediseases.org
- Myelin Repair Foundation: http://www.myelinrepair.org/
- Clearinghouse on Disability Information: http://www.ed.gov/about/offices/list/osers
- Multiple Sclerosis Association of America: http://www.msassociation.org
- Multiple Sclerosis Foundation: http://www.msfocus.org
- National Rehabilitation Information Center (NARIC): http://www.naric.org
- National Multiple Sclerosis Society: http://www.nationalmssociety.org
- American Autoimmune Related Diseases Association: http://www/aarda.org
- Paralyzed Veterans of America (PVA): http://www.pva.org
- Accelerated Cure Project for Multiple Sclerosis: http://www.acceleratedcure.org
Parkinson’s Disease
American Parkinson Disease Association
Alzheimer’s Disease and Other Dementias
- Alzheimer’s Association
- Alzheimer’s Disease Education and Referral Center (ADEAR): http://www.alzheimers.nia.nih.gov
- Alzheimer’s Foundation of America: http://www.alzfdn.org
- John Douglas French Alzheimer’s Foundation: http://www/jdf.org
- Association for Frontotemporal Dementias (AFTD): http://www.FTD-Picks.org
- National Institute of Mental Health (NIMH): http://www.nimh.nih.gov
- Lew Body Dementia Association: http://www.lbda.org
- Alzheimer’s Drug Discovery Foundation (Formerly the Institute for the Study of Aging): http://www.alzdiscovery.org
- National Respite Network and Resource Center: http://www.archrespite.org
- American Health Association Foundation: http://www.ahaf.org/alzheimers/
Neuropathy
- The Neuropathy Association
- The Foundation for Peripheral Neuropathy: http://www.foundationforpn.org
- American Chronic Pain Association (ACPA): http://www.theacpa.org
- Neuropathy Association: http://www.neuropathy.org
- American Pain Foundation: http://www.painfoundation.org
- National Kidney & Urologic Diseases Information Clearinghouse (NKUDIC): http://www.niddk.nih.org
- Charcot-Marie-Tooth Association (CMTA): http://www.charcot-marie-tooth.org
- Muscular Dystrophy Association: http://www.mda.org
- American Diabetes Association: http://www.diabetes.org
- National Diabetes Information Clearinghouse (NDIC): http://www.diabetes.niddk.nih.gov
Trigeminal Neuralgia
- TNA – Facial Pain Association (Formerly the Trigeminal Neuralgia Association): http://www.endthepain.org
- American Chronic Pain Association (ACPA): http://www.theacpa.org
- American Pain Foundation: http://www.painfoundation.org
Sleep Apnea
- American Sleep Apnea Association: http://www.sleepapnea.org
- National Sleep Foundation: http://www.sleepfoundation.org
- National Heart, Lung, and Blood Institute (NHLBI): http://www.nhlbi.nih.gov
Resources for the Aging
General Information
- Area Agency on Aging: Maureen Schultz, Information referral (510)577-1900
- Alzheimer’s Services East Bay, adult day heath: http://www.aseb.org/, or contact Berkeley Adult Day Care: (510) 644-8292, Hayward Adult Day Care: (510) 888-1411
Home Care
- Professional Healthcare at Home: (800) 654-5677
- Senior Alternatives, care management and healthcare services: www.bayareaseniorcare.com, Contact Janet Brush, (510) 482-3379, or Amy, (510) 685-4477
Elder Law
- Katherine Montgomery: Law Offices of Camp, Rousseau, and Montgomery, (510) 465-3885
- Gregory Wilcox: (510) 665-8400